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Hydrocephalus-related quality of life as assessed by children and their caregivers

Kathrin Zimmerman, Bobby May, Katherine Barnes, Anastasia Arynchyna, Elizabeth N. Alford, Gustavo Chagoya, Caroline Arata Wessinger, Laura E. Dreer, Inmaculada Aban, James M. Johnston, Curtis J. Rozzelle, Jeffrey P. Blount, and Brandon G. Rocque

were analyzed. Demographic characteristics that are categorical were summarized using counts and percentages, while continuous demographic and outcome variables were summarized using means and standard deviations. The Kruskal-Wallis test was used to compare the continuous QOL and psychological scores for different categories of categorical variables that had small numbers in some categories (for example, age of caregivers, etiology of hydrocephalus, and endoscopic third ventriculostomy (ETV)–alone hydrocephalus treatment). In these cases, we prefer to use

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Treated hydrocephalus in individuals with myelomeningocele in the National Spina Bifida Patient Registry

Irene Kim, Betsy Hopson, Inmaculada Aban, Elias B. Rizk, Mark S. Dias, Robin Bowman, Laurie L. Ackerman, Michael D. Partington, Heidi Castillo, Jonathan Castillo, Paula R. Peterson, Jeffrey P. Blount, and Brandon G. Rocque

hydrocephalus if they had a history of one or more qualifying hydrocephalus-related operations ( Table 1 ). TABLE 1. List of hydrocephalus-related procedures Ventriculoperitoneal shunt Creation of ventriculoatrial shunt Ventriculopleural shunt w/ valve Shunt of cerebral ventricle to gallbladder Creation of lumboperitoneal shunt Revision of cerebral ventricular shunt Replacement of ventricular shunt Removal of ventriculoperitoneal shunt Removal of cerebral ventricular shunt Endoscopic exteriorization of third ventricle Endoscopic third ventriculostomy We calculated the rate of

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Anxiety, depression, fatigue, and headache burden in the pediatric hydrocephalus population

Kathrin Zimmerman, Bobby May, Katherine Barnes, Anastasia Arynchyna, Elizabeth N. Alford, Caroline Arata Wessinger, Laura Dreer, Inmaculada Aban, James M. Johnston, Curtis J. Rozzelle, Jeffrey P. Blount, and Brandon G. Rocque

endoscopic third ventriculostomy (ETV) were eligible for enrollment. Eligibility criteria included the ability to independently complete a study questionnaire, as assessed by the patient’s caregiver and the research team. Children who did not have the maturity or mental capacity to complete the surveys were excluded. For the purposes of our research question, it was important to include only “well” children, ensuring that the headache, anxiety, depression, and fatigue symptoms reported were unrelated to potential shunt malfunction. Therefore, children who had undergone a